Craniofacial Program Overview
The ACH Craniofacial program is developed to comply with essential components of quality of care as identified by the ACPA.
Team Management & Responsibilities
Our team has two identified patient care coordinators who organize and coordinate the operation of the team. The coordinators facilitate the interdisciplinary planning necessary to achieve comprehensive care.
ACH has a process for exchanging information with schools, primary care professionals, outside agencies, and other professionals involved with the welfare of all our patients. Our process for obtaining informed consent is consistent with federal, state, and institutional requirements.
We greatly encourage patient and family/caregiver participation in the treatment process. Mechanisms are provided to ensure that the family/caregiver and patient play an active role in treatment decisions.
All services are provided without regard to race, color, religion, sex, national origin, disability, age, sexual orientation, or status as a parent/caregiver. The team is in compliance with all applicable federal, state, provincial, and local laws prohibiting discrimination.
Psychological & Social Services
As part of our interdisciplinary team, the craniofacial team consists of social workers, psychologists and psychiatrists capable of addressing the psychological and social needs of the craniofacial patient and family/caregiver. Assessments for cognitive development, learning disabilities and adjustments with human appearance related issues are conducted if indicated so that each patient receives appropriate educational services from infancy throughout adolescence.
Monitoring of Progress in Speech Development
The vast majority of our patients already work with a community speech pathologist. Our cleft- and craniofacial speech pathologist are in close contact with the speech pathologists in the community that the patients see either at school or during home care visits. During craniofacial team visits, The team visits with the patient to examine him/her and to integrate information from the outside speech pathologist so that changes and progress can be documented.
Monitoring of Surgical Progress and Collaboration
A craniofacial surgeon is often the first surgical consultant to meet the craniofacial patient. The surgeon performs prenatal, neonatal, in-office, and in-patient consultations. When the timing of a surgical intervention is deemed indicated and/or age-appropriate, this is communicated with all other members of the team.
Monitoring of Orthodontic Care
Our doctors review patient documents each month to ensure individualized treatment such as orthodontic and surgical planning as well as the timing of these procedures.
The Craniofacial team documents its treatment outcomes including clinical performance and changes over time in the centralized team record. Bi-annual meetings are held to discuss retrospective or prospective studies to evaluate the treatment patient outcomes. Findings that are of scientific interest are also discussed at this time. Every effort is made to engage resident and student participation in these meetings with the aim to enrich the educational environment and scientific exposure of future physicians in training.