In 2005, Lonny and Kara Tramell were preparing for the birth of their daughter, Rebecca, when they received startling news. A routine ultrasound revealed something wrong with their baby, and no one they consulted could determine what was wrong.
Becca was born at a Little Rock hospital, and after her birth, a doctor affiliated with Arkansas Children's Hospital was finally able to provide the Tramells with the answers they needed. Becca was diagnosed with Klippel-Trenaunay syndrome (KTS), a rare medical condition in which blood vessels and/or lymph vessels fail to form properly.
Becca was born with one foot and one leg larger than the other. She also has port-wine stains on her leg and back, which are a characterization of KTS.
When Becca was 2 months old, Kara brought her to the ACH clinic for vascular anomalies. Becca and Kara met with specialists who understood Becca’s rare condition and gave them advice and instructions on how to properly manage the KTS.
KTS is a condition Becca will have for the rest of her life. Because of her lymph vessels not developing properly, she often develops abscesses that fill with lymph fluid. She also gets cellulitis, a condition in which the tissue under her skin becomes inflamed, usually due to a bacterial infection.
“We were concerned when we first came to Children’s because this disease is so rare and so few people know how to treat it,” says Kara. “The vascular anomalies team at ACH has been so helpful. All I have to do is pick up the phone and call and they are on the case.”
Due to her foot and leg enlargement, doctors were not sure Becca would ever be able to walk. Eventually, she did begin using a walker, and now she walks completely unassisted.
“We are so proud of Becca,” says Kara. “She has a wonderful attitude, and she does not let her KTS get her down. She does pretty much anything a toddler her age could do.”
Arkansas Children's Hospital, 1 Children’s Way, Little Rock, AR 72202-3591, (501) 364-1100 or TDD (501) 364-1184