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Cystic Fibrosis: Resource List

Books for Children

Ages 4 to 8

  • Taking Cystic Fibrosis to School; Cynthia Henry; JayJo Books, 2000

Ages 9 to 12

  • Cystic Fibrosis; by Susan D. Gold; Crestwood House, 2000
  • Miguel and Sarah: Close Friends and Cystic Fibrosis; by Andrea C. Dowell; Children's Hospitals and Clinics (Minneapolis, MN), 1999

Young Adult

  • Cystic Fibrosis; by Judy Monroe; LifeMatters, 2001
  • Cystic Fibrosis: Handbook For Patient And Family; by Daniel Markovich; Emjays Graphics, 2008
  • Living with Cystic Fibrosis; by Susan Gray; Child's World, 2002

Books for Adults

  • Cystic Fibrosis: Everything You Need to Know; by Wayne Kepron; Firefly Books, 2004
  • Cystic Fibrosis: A Family Affair; by Jane Chumbley; Sheldon, 1999
  • Cystic Fibrosis: A Guide for Patient and Family; by David M. Orenstein; 3rd ed.; Lippincott-Raven Publishers, 2004
  • Cystic Fibrosis: The Facts (2nd ed); by Anne H. Thomson, Ann Harris; Oxford University Press, 2008
  • Living With Cystic Fibrosis; by Susan Gray; Childs World, 2002

Other Resources

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
Web site:
Educational, research and resource materials.

Compiled by Catherine Smith, MLS, medical librarian at the Family Health Library, The Children's Hospital, Denver, CO.
Pediatric Advisor 2012.2 published by RelayHealth.
Last modified: 2010-06-04
Last reviewed: 2010-06-04
This content is reviewed periodically and is subject to change as new health information becomes available. The information is intended to inform and educate and is not a replacement for medical evaluation, advice, diagnosis or treatment by a healthcare professional.
© 2012 RelayHealth and/or its affiliates. All rights reserved.
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