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Heart Center Resources

Critical Congenital Heart Disease (CCHD) Resources

There are many types of heart defects and our expert team of heart specialists at Arkansas Children's provides care for a comprehensive list of heart defects and conditions. Some are called “critical congenital heart disease” or CCHD. CCHD may occur when a baby’s heart or major blood vessels do not form properly. A “critical” heart defect is one that needs urgent treatment in order to have the best outcome for the baby. Treatment can include medical and surgical procedures. Learn more about CCHD by visiting the links below.

About Critical Congenital Heart Disease (CCHD)

Other Resources

Beads of Courage®

What is Beads of Courage?

Beads of Courage is a 501(c) 3 tax-exempt organization dedicated to helping children with serious illness record, tell, and own their stories of survival. When children undergo treatment for serious illnesses, needle sticks, x-rays and hospital stays are all painful episodes to be endured. Beads of Courage is a program that awards these brave patients with beads to represent each milestone. Through this program, children are able to tell their story using colorful beads as meaningful symbols of courage that commemorate milestones they have achieved.

Initially created to help children endure cancer treatment, the program has since been modified to also reach patients with cardiac conditions. Patients receive a necklace with their name and a bead symbolizing the cardiac program. With every milestone in a patient's treatment, beads are added to help tell a story of understanding, acceptance, and survival unique to each child's journey. These colorful beads are worn proudly by patients or their families as a symbol of courage. They are a constant reminder to take each procedure one day at a time. These beads bring energy and excitement to patients and families.

Major Benefits

Ongoing evaluation of the Beads of Courage program indicates that the program helps to decrease illness-related distress, increase the use of positive coping strategies, helps children find meaning in illness, and restore a sense of children coping with serious illness. The program also provides something tangible the child can use to tell about their experience during treatment and after.

For more information or to make a donation email us: CVICUbeadsofcourage@archildrens.org.