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Resources for Families Coping with Brain Tumors

Our team knows that when your child is affected by a serious condition such as a brain tumor, support resources can be very helpful with the ability to cope through all phases of care. Arkansas Children’s provides help through our team members’ vast experience and expertise with serious health conditions as well as national resources that provide guidance and support. 

Educational Resources for Patient and Family Support

  • American Brain Tumor Association – Provides helpful information, including a brain tumor dictionary, information for newly diagnosed patients and the ability to find or become a mentor
  • Caregiver Resource Center of the American Brain Tumor Association – Includes information about caregivers, the impact on the family and specifics to help children, teens and families cope
  • Children’s Brain Tumor Foundation - Provides a list of organizations and government funded programs that offer information and support for families dealing with cancer, including medical equipment coverage
  • Pediatric Brain Tumor Association – Through a community of dedicated individuals and programs, support is available for camps and clinical trials as well as advocacy and college scholarships
  • National Brain Tumor Society – News, blog, fact sheets and press releases on relevant and current information about brain tumors
  • A Kids’ Brain Tumor Cure – Including childhood brain tumor information, including brain tumor research, news, and resources
  • Central Brain Tumor Registry of the United States – A resource for statistical data on all primary central nervous system (CNS) tumors, this registry represents the largest aggregation of population-based data
  • DIPG Registry - a collaborative effort by physicians and researchers from North America, Europe, and Australia to centralize and standardize the collection of clinical data and tumor samples from DIPG patients. 

Financial Assistance Resources Available

  • Francesco Loccisano Memorial Foundation – Also known as Frankie's Mission, confidential applications for general assistance such as transportation, housing, medication, insurance premiums and other needs
  • Friends 4 Michael Foundation – Provides supplementary financial assistance to families, guardians or caregivers with financial needs resulting from expenses associated with the child’s brain tumor treatment
  • Iron Matt Foundation – Provides the opportunity for direct financial assistance to families regardless of their socio-economic status, the type of brain tumor (malignant or not) or the progress of the disease 
  • Mission 4 Maureen - Brain tumor patients from all 50 states across the USA may apply for assistance in paying bills on behalf of qualified patients and their families
  • Tug McGraw Foundation – Advancing science and partnerships to promote brain health and improve the quality of life for any affected by brain cancer or brain trauma.