When your child is diagnosed with hemophilia or a bleeding disorder, managing and living with the condition can seem overwhelming. You can rest easy knowing that with the proper care – and a few precautions – your child can live life like most children. In fact, sports and physical activity are encouraged because they help your child develop stronger muscles and joints, which can reduce the frequency of bleeding episodes.

The experts at the Arkansas Center for Bleeding Disorders work with you and your child to create a care plan that keeps your child healthy while living life to the fullest.

We’ve been assisting families living with hemophilia and other bleeding disorders for more than 30 years by offering excellent clinical care and research. We deliver the most up-to-date, multidisciplinary care for patients from birth through adulthood. Your child will receive attentive and watchful care here at Arkansas Children’s.

Possible Conditions

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Meet the Team

Surround your child with expert hemophilia and bleeding disorder care

At Arkansas Children's, your child will benefit by receiving treatment from leading experts in treating hemophilia and bleeding disorders. We are the first and only Hemophilia Treatment Center in Arkansas and we are a designated Comprehensive Hemophilia Treatment Center by the Department of Health and Human Services’ Maternal Child Health Bureau. We also are certified by the National Hemophilia Foundation for providing comprehensive care to children and teens with bleeding disorders.

The care team includes

  • Hematologist (a doctor who specializes in blood problems)
  • Gynecologist (a doctor who specializes in treating women)
  • Orthopedic Surgeon (a doctor who specializes in bone surgery)
  • Dentist (a doctor who specializes in the care of teeth)
  • Psychologist (a doctor who specializes in mental health)
  • Physician Assistant (a health care professional licensed to practice medicine and write prescriptions)
  • Social Worker (helps individuals and families cope with situations and improve their lives)
  • Physical Therapy (a health care professional who can help strengthen muscles, improve mobility)
  • Hemophilia Coordinator (helps families coordinate care)
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Locations

At Arkansas Children's your child will benefit by receiving treatment from leading experts in treating hemophilia and bleeding disorders. We are the first and only Hemophilia Treatment Center in Arkansas and we are a designated Comprehensive Hemophilia Treatment Center by the Department of Health and Human Services’ Maternal Child Health Bureau. We also are certified by the National Hemophilia Foundation for providing comprehensive care to children and teens with bleeding disorders

Possible Treatments

Bleeding disorder treatments aim to keep your child healthy, safe and free from complications. We provide:

  • Clinical management
  • Laboratory evaluation
  • Factor replacement
  • Comprehensive evaluation by specialists (such as orthopedists)
  • Physical therapy

We’ll work with you to create the best treatment plan for your child’s specific type of bleeding disorder.

Get help paying for treatments

We participate in the federal the 340B Pharmacy Program The 340B Pharmacy Program lets Arkansas Children’s purchase hemophilia factor replacements at reduced prices. When you enroll in the program, the factor replacement is delivered to your home.

All revenues from the program are invested back into the care and treatments we provide, such as:

  • Patient services
  • Care coordination
  • Research

Participation in the 340B Pharmacy Program lets us continue to grow and expand the Arkansas Center for Bleeding Disorders and the programs we offer to our patients.

Clinical Trials

Your child may also be able to take part in a clinical trial for hemophilia or another bleeding disorder. We are currently participating in several different trials. Talk with your child’s doctor to find out if he or she child can benefit from one of these studies.

  • American Thrombosis and Hemophilia Network (ATHN). We are a participating hemophilia treatment center in the ATHN, a nonprofit organization dedicated to improving the lives of people affected by bleeding and clotting disorders. We participate in various registry studies, such as:
    • My Life, Our Future. This is a biology/registry study that offers free genotyping to patients and their families.
    • Community Counts. The Community Counts project is gathering data to learn more about patients with bleeding and clotting disorders at hemophilia treatment centers nationwide. The goal is to increase knowledge of inhibitors and other complications, reduce and prevent them from happening, and ultimately improve the quality of life for people with bleeding disorders. The project is led by the American Thrombosis and Hemophilia Network (ATHN) in partnership with the U.S. Hemophilia Treatment Center Network and the Centers for Disease Control and Prevention (CDC).
  • Study of extended half-life factor in newly diagnosed patients. This is an open-label, multicenter evaluation of the safety and efficacy of recombinant coagulation factor VIII Fc fusion protein in the prevention and treatment of bleeding in previously untreated patients with severe Hemophilia A.
  • EINSTEIN Junior Phase II: oral rivaroxaban in children with venous thrombosis. This is a 30-day, open-label, active-controlled, randomized study of the safety, efficacy and the pharmacokinetic and pharmacodynamic properties of oral rivaroxaban in children with various manifestations of venous thrombosis.

These websites help families learn more about hemophilia and bleeding disorders.

Events for Families

We provide and sponsor several events each year to support children and families learning to live with and manage a bleeding disorder. 

Hemophilia Education day for families

Our annual education day takes place at Arkansas Children’s, Professional Building from 8 a.m. to 1 p.m.

This event provides:

  • Information on the most current therapies
  • Guidance in the transition of care for teens in adulthood
  • Support groups
  • Further education on bleeding disorders

Bleeding Disorders Camps

The Bleeding Disorders Camp is for children ages 6 to 16. You can also visit http://www.campaldersgate.net/Programs/summer-camps to download an application. Please contact Kara Burge at 501-364-6662 or burgeKB@archildrens.org for information about camp dates and application deadlines,

Camp Aldersgate

Arkansas Children’s has a unique partnership with MedCamps of Arkansas, Inc., a not-for-profit project of the Arkansas Chapter of The American Academy of Pediatrics, which provides summer medical camps dedicated to children who are diagnosed with specific medical conditions. Through MedCamps, our patients are able to participate in summer medical camps, which include Camp Aldersgate and Camp Nopokamee.

Camp Nopokamee

This is the official camp sponsored by the Hemophilia Foundation of Arkansas. It is held at the 4-H center in Little Rock. Please call 501-428-5754 or email secretary@arkhemofoundation.org for information about camp dates and application deadlines.

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